“Very often, a physician will look in amazement at an image or lab result and say, ‘These results are so bad, I can’t believe this patient is walking around,” Dr Kratz explained. At other times, tests reveal no apparent signs of disease pathology, even when the patient is disabled or greatly suffering.

“Objective tests results are just one piece of information about a patient — and not always the most important piece. If we truly want to provide patient-centered care that aims to improve quality of life, getting our patients’ perspective of how they are feeling and functioning is paramount,” Dr Kratz said.

“High quality PROs, such as those offered by PROMIS, can be helpful,” Dr Kratz concluded.

References

1. Williams DA, Kratz AL. Patient-reported outcomes and fibromyalgia. Rheum Dis Clin N Am. 2016. 2016 Mar 17 [Epub ahead of print] doi:10.1016/j.rdc.2016.01.009

2. Lawrence RC, Felson DT, Helmick CG, et al. Estimates of the prevalence of arthritis and other rheumatic conditions in the United States. Part II. Arthritis Rheum. 2008;58(1):26-35. doi: 10.1002/art.23176.

3. Kratz AL, Schilling S, Goesling J, Williams DA. The PROMIS FatigueFM Profile: a self-report measure of fatigue for use in fibromyalgia. Qual Life Res. 2016 Jan 28. [Epub ahead of print] doi:10.1007/s11136-016-1230-9.

4. Kratz AL, Schilling SG, Goesling J, Williams DA. Development and initial validation of a brief self-report measure of cognitive dysfunction in fibromyalgia. J Pain. 2015;16(6):527-536. Epub 2015 Mar 4. doi: 10.1016/j.jpain.2015.02.008.